Recently I was invited to speak at
Usually at these type of ethics
and internet mediated research events there are a diverse bunch of cross
discipline and cross institution technicians, practitioners, ethical specialists,
to name a few. This event had a diverse audience but in a different way; they
were mostly from Sheffield
University . The great
turnout demonstrated how there was not only commitment to high ethical standards,
but actual interest from across departments and job roles at the University. I
met a few administrators that manage the huge numbers of ethics applications,
members of the university research ethics committee, and students and
professors galore!
The morning had a great line up of key note speakers. Professor
Richard Jenkins from Sheffield
University provided a
nice overview of ethics in international projects around three themes:
- data must satisfy the host country’s legal and
ethical requirements,
- data must satisfy your university’s REC policy, and
- data must satisfy the professional standards of the
profession you are associated with.
Professor
Joe Cannataci from the University of Malta cut the legal jargon and
conveyed important points about data protection and the use of personal data
from the internet. He drew on an intriguing array of international projects
(one of which may have involved a funny story of him dancing his entrance to
gain acceptance when meeting a rural tribe in Malaysia ). He started his
presentation by discussing the principle of relevance in data protection law.
This is something many of us in research are familiar with- collect only the
right data, collected only by the right people, at the right time and used by
the right people in the right way for an agreed time. Say that 10 times fast!
Of particular relevance to researchers beginning studies across Europe is knowing where the data is to be stored because
there are different data protection laws in European countries compared to EU
countries.
Next up was Claire
Hewson from the Open University. Claire provided an overview of the
challenges associated with the ethics of internet mediated research. A point
that got me thinking ‘Is there truly an ‘unobtrusive’ type of data collection?’
was her distinction between obtrusive and unobtrusive methods. Obtrusive are
activities such as actively recruiting individuals and those individuals
knowingly partake in research. Unobtrusive methods included big data, data
mining, and observations. It’s only unobtrusive because people are not aware of
it in the first instance. It would become pretty obtrusive to some if
participants were cognisant of what was being done with their personal data. A
nice take away point from the presentation was that ‘thinking is not optional’
when it comes to applying ethical frameworks to changing online environments.
After a tasty lunch in Sheffield University ’s
lovely new student union building my turn was up! I delivered a session on the
challenges of social media research, drawing upon recent exploratory research
with users of social media (http://www.natcen.ac.uk/our-research/research/research-using-social-media-users-views/)
about their views on researchers using their data in their work. I also drew on
the work of the network and the survey conducted by network member Janet
Salmons on researcher and practitioner
views of the ethics of online research. My group explored the challenges
associated with three themes: recruitment and data collection; interviewer
identity and wellbeing; and analysis and presentation of data. Summarising key points
that we as researchers are familiar with, I pushed the issues home by using
direct examples from our exploratory research.
We wrapped up with a section on recommendations including only
using social media in research if it is appropriate for your question; being
transparent with participants and other researchers about risks of the research
and the limitations of your sample; taking reasonable steps to inform users of
your intention to utilise their data in research. Read the full list of
recommendations in the report, here.
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